Hi all, I have little idea who is following this blog - I have tried to convey a snapshot of Willies short time on earth. I say a snap shot because it's taken from the memories in my own mind. If I ever did get round to making it into a book I would speak to many people who came and went in his life. I would have page upon page of fond stories they would recall.
His mum would definitely include their many visits to the beach. Zoe made a huge effort to go away as often as they could, au pair in tow to enjoy the delights of sea and sand. There is a fab photo of Willie on his 'banana' phone - ie holding a real banana held expertly in the telephone position as he made one of his famous imaginary phone calls.
Long walks, through woods and parks. Hose pipe spraying in summer, wellies and mud in Winter. Squidgy cuddles with small arms locked around your neck, sleeping like an angel with one hand on her. Because of his constant changes in mood, behaviour and temperature Zoe always slept with him to watch him and feel him close each night. It worked well for them both. Security for Willie and a knowledge for Zoe that she was there in case he was sick or floppy. How empty her bed must have been the night after he got his wings, I cannot begin to imagine the searing pain of reaching out and waking up to realise it wasn't a bad dream, but reality ...her small soulmate no longer there to cuddle, to stroke the soft curls and kiss the chubby little cheeks.
His dad would probably recall visiting him, ruffling his curls, and bending down to his level..receiving a big hug with those little arms squeezing tight behind his neck. Willie would be keen to show his dad the contents of his pocket or try to co-erce him into letting him go on a skateboard. In his absence working away, David would telephone the children daily to speak to them from wherever he was in the World. He worked hard to provide for them, and spent weekends with them whenever he could. As parents they were united in making life as comfortable and as happy as possible for their children, putting aside their differences to take them to the park to push them on the swings, and play ball with them. It must have been hard hearing when Willie was ill again, when he was so far away, wanting to jump on the next flight if he was admitted into hospital without warning. It broke him watching Willie in his last few days, helpless as a father, not being able to save his son. Wanting to hold him close, never to let him go. We have a beautiful photo of the three of them huddled together on the settee with Willie lying on their laps, a beautiful and poignant photo, they all looked so peaceful as together they were in unison with their son and brother as he waited for his wings.
Rheanna his sister is coming to stay with us next weekend, now all grown up and learning to drive. I will write a blog with her to share with you the many wonderful and sometimes sad memories of growing up with her baby brother. She spoke eloquently at his memorial service and acknowledged that even though she was sad he had been born with a brain tumour, it defined who he was..how he was...and she wouldn't have had him any other way, he was gorgeous and funny, and they adored each other. His illness never changed his huge heart and capacity to love, hug and giggle. I know she has so much to share, and she to misses him like crazy.
His paternal grandmother and Captain 'Poo' would recall Christmas family meals out at a restaurant with big sacks of presents and his excitement at opening carefully chosen gifts, like the small blue iPod that fitted perfectly into his pocket. The first time he went swimming in a neighbours pool with them, which he loved...playing with his cousin Micha and big sister altogether giggling, and.kicking a soft football around. Cuddles with aunty Fiona. They loved taking him out for a coffee and a treat. So many fond memories ...so very sad that they didn't have so long to enjoy him. Children don't usually die before their parents let alone their grandparents.
I have many friends that became a big part of his life to, and Dan Driver my godson was one of Willies heroes. Not only was he living in a small caravan working on a vineyard...that was an exciting adventure in itself but Dan also played the guitar. Can you see a pattern emerging. Dan is a Catholic and he wrote some music to the words of The Hail Mary prayer. We went to visit Dan when Willie wasn't too well and was totally blind. Describing the small caravan to Willie was fun, and he could feel how small it all was as we ducked and dived in this tiny organised space.
Dan made us a cup of tea and strummed on the guitar. He sang the Hail Mary, and Willie loved it so much he kept saying 'again Danny again' when Dan finished it. It was a very special bond that was made that visit.
Later in his last days Willie asked for that song, and as Dan wasn't in the Uk at the time I telephoned Dan's mum Belinda and she sang it to him over the phone. He laid smiling - peacefully listening. It was as if he did have a deep understanding of the words and their meaning.
The many au pairs will have sooo many beautiful memories. It was not an easy job - not the A-typical family often employing au pairs. Zoe couldn't cope without constant help at home, due to her disability and frozen shoulder. The damages received for her damaged shoulder following a car accident funded those extra pair of much needed hands. Zoe lived in an average sized 3 bedroom semi detached red brick house with a small extension providing an extra bedroom with shower and a downstairs toilet. It was situated in a long cul de sac mid way between a posh village Cold Ash and a less salubrious town Thatcham where I to resided.
I would scan the short list of applicants each time there was a change - to give my honest opinion on how suitable they seemed. It was hard as Zoe had to pay for them to come over from foreign lands eg Czech Republic, for an interview. So if they didn't like the family or Zoe didn't think they would be right then it became a costly business. The au pairs often came over with the purpose of learning English so the interview and first few weeks could be slightly awkward as they adjusted to this very precarious situation, with pidgeon English - there was a lot of hand waving and demonstrating from Zoe as she tried to explain how to best care for Willie and Rheanna.
Zoe sifted through many applications, she had several 'boxes' that were essential for ticking...patient, fun, loving, kind, likes organic food, will play with Rheanna and Willie, good at cooking, housework and would be willing to go the extra mile - i.e. being hosed down in the garden if Willie wanted to hose them down lol. I used to say their should be one box - a Christian faith - as my belief was that anyone would enjoy the position better with The Grace of God to draw on. There would always be crazy times, happy times, difficult tasks and sad moments. Signing up was a brave thing to do but the ones who made the grade gave their heart and soul and were often better than you could have ever wished for.
Many did apply, many were rejected, some stayed a year or so, one only a few weeks. It was a demanding full on position with so much responsibility but the good ones were amazing. Zoe had a very high standard. Her ideals for organic food and lots of fresh air had to be adhered to. There were certain ways to cook the food and load the dishwasher. Hard for everyone including Zoe. I cannot imagine standing by watching other people manage your children, playing with them, jumping on the trampoline, doing acrobatics and dancing wildly when you wanted to - but couldn't because of your body, not able to pick up, bend down or jump with excitement. So hard, yet Zoe remained strong and resigned to sitting and watching them all enjoying themselves together - with a smile on her face.
Astrid, a firm favourite with the two children, was there before Willies diagnosis. I met the family through Astrid and another friend. She was a young Czech girl who was adorable, fun loving and a bit scatty!They all adored her and she would take Willie on bus rides to Reading whilst Rheanna was at school. Willie and Rheanna often fought for attention from the lovely au pairs, so there were battles going on frequently to cajole the au pair to play with them.
Maria another fond favourite, was incredibly sensitive and very funny. Adored by us all, yes me included as she was as beautiful on the inside as she was on the outside. Radim her boyfriend lived close by and often visited, to the delight of the two children. At sometime Radim's brother Victor joined in the fun, followed by Magda his girlfriend. Victor lodged with us for a few weeks (I do have the most understanding husband) and so did Maria when it got too tough staying 24/7 in a smallish space and a very demanding situation.
A real family affair - they were and still are a delightful bunch. Now all married and back in Prague and with children of their own they will have many poignant memories. We to have many fond memories. They gave their hearts and souls going beyond the call of duty to ensure the best care and the greatest fun was had by all.
At a time of great need in between au pairs Magda came over especially from Prague for 3 weeks. She dedicated her life 24/7 as Willie was getting weaker, it was real hands on care. Zoe was starting to get down knowing the inevitable was fast approaching so it was a tough but rewarding few weeks. Zoe totally appreciated Magda's care and heartfelt love, it took Magda a few months to recover from the enormity of the situation, once she was back home. It had been an emotional roller coaster.
Katharina a lovely German girl came for a few months. A nurse wishing to improve her English she
seemed the perfect choice. She adapted quickly and settled in, the children loved her and wanted her attention as always. Eventually this young girl found the going too tough :( - she also stayed with us whilst finding alternative work and accomodation. Khatarina is now back in Germany nursing and living happily with her partner. Rheanna went over for a holiday a few years ago - evidence of the strong bonds made.
Dhelia a wonderful tiny Philipino lady was older than all the other au pairs, and had grown up children back home that she sent money to. She was 'on fire for God' - an amazing Christian lady that Willie loved - older but still full of fun...and she would talk about Jesus to Willie as she looked after him, and prayed with him and for him. I was sad to see her leave, as I was with all the others. But there is only so long they could stay. The physical and emotional journey with the Foster-Hortons was always rewarded with love and laughter from the children - great moments of joy - coupled with hours of housework, hospital visits, and looking after and entertaining Wiliie and Rheanna - eventually it became too tiring and they moved on, leaving a fragrance of Jesus behind in Dhelias case.
Michael their only male au pair was a breath of fresh air after a bit of a blip in the line of successful au pairs. He came with new ideas for giving structure and routine to the household. He introduced discipline for the first time. As you can imagine this was a difficult task for Zoe. Hard enough when you have small cute children but when one has serious headaches and complications due to a brain tumour, how impossible is that to think about 'the naughty step' . Also Zoe had a sense of Rheanna being in the shadow of her brothers needs and so found it very hard to tell her off, as she felt guilty not being able to spend quality time with her.
Michael had an endearing way with him and persuaded Zoe it would be best for the two children and Zoe if there was a semblance of order. This approach quickly won him the 'worst au pair' ever award - voted by Willie and Rheanna. They really did not appreciate his new rules and restrictions...and rebelled 'as one'. However after a few weeks there was a sense of calm in the household as Willie and Rheanna were more obliging and listened to Zoe a bit more.
The children eventually won, and Michael moved on - although he remained a loyal and caring friend
To them all.
Martina the final au pair was young and energetic. Also from the Czech Republic, she soon learnt to speak good English. Willie loved dancing and being flipped upside down by Martina. He would giggle incessantly. An excellent housekeeper and quiet by nature, she completed their family for the duration of her stay, only leaving - sadly - when an au pair was no longer required.
Rheanna and Willie idolised her, and kept her very busy. Like all the others, her compassion was endless and her heart for them all, helped her to go that extra mile. In a world of happy excited children, sometimes very poorly quiet children, a mother suffering often with excruciating migraines, a house where there could be no loud noises, no TV, but a treasure chest of inner joy found deep in the hearts of The Foster-Horton family.
I salute each and everyone one of the au pairs - I thank God He sent angels without wings to walk with this precious family in their time of great need.Amen indeed to that!
Willie
Little Angel, in hospital 5 years old.
Tuesday, March 25, 2014
Sunday, March 16, 2014
School fun days...
School...Willie never reached the dizzy heights of looking forward to school ..the best he got to, was a simmering resignation that for some reason - unbeknown to him - he had to attend ...regularly.
Zoe and David really wanted him to go to mainstream school and he was already familiar with St Marks as 'Rara' his older sister had been there for a couple of years. Willies favourite teacher before he even began was Mr Warrender...he had heard him playing the guitar in assembly (watching Rara) - when he was only 2.and became his no 1 fan. Playing guitar usually got you on Willie's 'most accepted' list.
I was impressed he could recall such a long name :) Sadly His son Harry Warrender was not a guitar player and despite infinite attempts by Harry to make friends with Willlie, he never gelled with him. Poor Harry was sad about that, but no amount of cajoling would entice Willie to return the open hand of friendship.
He flouted the uniform rules and wore light grey elasticated jogging bottoms. These were more comfortable round his waist and the head teacher eventually caved in to allowing a deviant to the smart and strict uniform at St Marks primary school in Cold Ash. Occaisionally his navy granddad style jumper made an appearance. This was definitely his favourite as it had more pockets for his daily treasure.
Children are excellent at accepting each other and having a high level of tolerance. Willie only extended that policy to a chosen few. There was no rhyme or reason ...sometimes a spark of devilment in a character that would amuse him, helped. I can still hear the irritation in his voice if someone tried to join in with an activity. "JaaaDe Noooo" he would say determined not to share the play dough.
Play dough was one of the few activities he relished, water play, sand pits and mud digging also in his top 5. Reading, Writing, listening, Maths, drawing, painting "Noooooo" in fact Willie didn't ever learn to read , maybe he knew it was irrelevant.
Phonic books were often discarded by posting them through a gap in the fence, or trying to bury them in a freshly dug hole, as one teacher recalls. Carol Collis has many fond memories of his thwarted attempts to hide any book given to him. She remembers being at his memorial service and realizing he probably knew he wouldn't be needing that skill in his lifetime.
He had absolutely no interest in reading. The only book he loved was Crispin the pig. It was a story about a pig who had so many toys but no friends. One day Crispin started playing in a big cardboard box that he imagined was a spaceship or other exciting things and through this imaginative play he met lots of friends. Willie loved the story with a passion, and we read it regularly. I often wondered if this was a reflection of how he felt himself , sadly no 'normal' friendships were ever made...possibly because he always had a carer in tow. he did also prefer the companionship of older children than his peers and in particular adults.
Everyday school curricula like sitting on the mat first thing were the hardest times to get him to conform. I resorted sometimes to whispering in his ear "If you are quiet you will hear the teacher f***. This made him giggle which did get us a look from the teacher but actually kept him quiet for a few minutes.
The dressing up corner was a firm favourite, and playing shops or 'cooking' on the toy cooker. As his teaching assistant in reception it was my job remit to help engage Willie in each subject. His teachers job shared, Mrs Zealey I believe set his targets and goals. Mrs Zealey was known to be strict by nature, a little scary (mostly the parents were scared) but I have to confess she was brilliant with Willie and his education. Mrs Collis was softer spoken and not scary at all. I believe he liked them equally and did want to please them both. it was a challenging time for all the teachers to provide the right level of education for Willie, and at the same time not being too soft inspite of his illness. I believe the whole school adapted brilliantly and on reflection I felt it was an important and rewarding time for him.
He loved Mrs Marshall one of the other assistants as he thought she was a bit 'silly and lots of fun". After I left he did have many other one to one teaching assistants that I know have fond memories of him and their time together. Memories of them 'enjoying?' and 'exasperating' at the same time lol. Each and everyone adapted to his needs and understood his need to enjoy school within the educational system. They succeeded on the whole, as it was a mammoth task to cajole Willie to stay inside - even on the coldest wettest day..convincing the teachers with his persuasive arguments that there was every good reason to dig in the mud, despite the huge storm going on. They found themselves questioning their own rationale and almost caved in. Willie held the key to their hearts and they all allowed him a certain amount of bending the rules, often flouting them outrageously.
Tania Edwards his year 2 teacher, gave an incredible comic and fond performance of Willie at his memorial service, stripping off at the front to reveal the hidden drill tucked in the top of her trousers. He definitely made his mark at the school.
He would get grumpy if one of his least favourite classmates tried to help him or join in an activity. "Goooo away..Matthew" - he knew everyone's name he had an excellent memory capacity, and only had to be told once. I can't remember the names of all those in his year, and the rest of the school, so I'm making them up - eeek - if Willie was still here he would be able to reel off each and everyone of the 160? pupils in the school at that time.
He bought out the best in his peers, they looked out for him, called out his name after he lost his sight, so as to identify themselves, and generally accepted him for himself. They tried to make him giggle, and wanted to befriend him in the playground. they took great care not to injure him in anyway and so treaded carefully around him.
Zoe has given a trophy of 'kindness' in memory of Willie to be presented to a pupil that has been particularly caring during the school year. The first year it was presented to his whole class, for all their love and support to Willie through the years. They were amazing.
PE was almost an impossible task trying to cajole him to run in a straight line from one post to another. These kind of activities were not in line with meandering around the field finding mud to dig and sticks to pick up ...he usually ran straight back towards the classroom moaning lol.
He did enjoy ball games and sometimes the apparatus could be fun....one of my most memorable days was the sports day that Willie took part in. I stood with Zoe the other side of the rope held by two parents at the finish line. All the other little ones aged 6 ran as fast as they could wind sailing by their ears, giggling and falling over as they threw themselves across the finish line.
Willie, with all the stamina and speed he could muster walked/jogged towards me and his mum, unperturbed by the fact he was a long way behind his competitors. The others long since finished, turned and watched, the whole of the school - pupils, parents and staff cheering him on. All united in compassion and willing him to keep going "Willie Willie" they all chanted. Zoe and Rheanna watched on with pride. His teaching assistant within 'catching distance' should he trip and fall.
This short chubby little boy, in baggy navy shorts and sky blue t-shirt, blond curls swaying, headed home to the finish with the biggest cheekiest grin on his face ...over the finish line and into my arms as I swept him up and twirled him round hugging him tight...to the cheers of the crowd...I placed him back on the floor and he proudly accepted his sticker, from the smiling parent.
A huge achievement, and a tremendous effort - recognised by the onlookers...probably not a dry eye on the field. Zoe was so amazed and proud of her brave boy, even though she was unable to pick him up herself she beamed from ear to ear as I swung him in the air. Willie was buoyant with excitement and relished his victory.
Zoe and David really wanted him to go to mainstream school and he was already familiar with St Marks as 'Rara' his older sister had been there for a couple of years. Willies favourite teacher before he even began was Mr Warrender...he had heard him playing the guitar in assembly (watching Rara) - when he was only 2.and became his no 1 fan. Playing guitar usually got you on Willie's 'most accepted' list.
I was impressed he could recall such a long name :) Sadly His son Harry Warrender was not a guitar player and despite infinite attempts by Harry to make friends with Willlie, he never gelled with him. Poor Harry was sad about that, but no amount of cajoling would entice Willie to return the open hand of friendship.
He flouted the uniform rules and wore light grey elasticated jogging bottoms. These were more comfortable round his waist and the head teacher eventually caved in to allowing a deviant to the smart and strict uniform at St Marks primary school in Cold Ash. Occaisionally his navy granddad style jumper made an appearance. This was definitely his favourite as it had more pockets for his daily treasure.
Children are excellent at accepting each other and having a high level of tolerance. Willie only extended that policy to a chosen few. There was no rhyme or reason ...sometimes a spark of devilment in a character that would amuse him, helped. I can still hear the irritation in his voice if someone tried to join in with an activity. "JaaaDe Noooo" he would say determined not to share the play dough.
Play dough was one of the few activities he relished, water play, sand pits and mud digging also in his top 5. Reading, Writing, listening, Maths, drawing, painting "Noooooo" in fact Willie didn't ever learn to read , maybe he knew it was irrelevant.
Phonic books were often discarded by posting them through a gap in the fence, or trying to bury them in a freshly dug hole, as one teacher recalls. Carol Collis has many fond memories of his thwarted attempts to hide any book given to him. She remembers being at his memorial service and realizing he probably knew he wouldn't be needing that skill in his lifetime.
He had absolutely no interest in reading. The only book he loved was Crispin the pig. It was a story about a pig who had so many toys but no friends. One day Crispin started playing in a big cardboard box that he imagined was a spaceship or other exciting things and through this imaginative play he met lots of friends. Willie loved the story with a passion, and we read it regularly. I often wondered if this was a reflection of how he felt himself , sadly no 'normal' friendships were ever made...possibly because he always had a carer in tow. he did also prefer the companionship of older children than his peers and in particular adults.
Everyday school curricula like sitting on the mat first thing were the hardest times to get him to conform. I resorted sometimes to whispering in his ear "If you are quiet you will hear the teacher f***. This made him giggle which did get us a look from the teacher but actually kept him quiet for a few minutes.
The dressing up corner was a firm favourite, and playing shops or 'cooking' on the toy cooker. As his teaching assistant in reception it was my job remit to help engage Willie in each subject. His teachers job shared, Mrs Zealey I believe set his targets and goals. Mrs Zealey was known to be strict by nature, a little scary (mostly the parents were scared) but I have to confess she was brilliant with Willie and his education. Mrs Collis was softer spoken and not scary at all. I believe he liked them equally and did want to please them both. it was a challenging time for all the teachers to provide the right level of education for Willie, and at the same time not being too soft inspite of his illness. I believe the whole school adapted brilliantly and on reflection I felt it was an important and rewarding time for him.
He loved Mrs Marshall one of the other assistants as he thought she was a bit 'silly and lots of fun". After I left he did have many other one to one teaching assistants that I know have fond memories of him and their time together. Memories of them 'enjoying?' and 'exasperating' at the same time lol. Each and everyone adapted to his needs and understood his need to enjoy school within the educational system. They succeeded on the whole, as it was a mammoth task to cajole Willie to stay inside - even on the coldest wettest day..convincing the teachers with his persuasive arguments that there was every good reason to dig in the mud, despite the huge storm going on. They found themselves questioning their own rationale and almost caved in. Willie held the key to their hearts and they all allowed him a certain amount of bending the rules, often flouting them outrageously.
Tania Edwards his year 2 teacher, gave an incredible comic and fond performance of Willie at his memorial service, stripping off at the front to reveal the hidden drill tucked in the top of her trousers. He definitely made his mark at the school.
He would get grumpy if one of his least favourite classmates tried to help him or join in an activity. "Goooo away..Matthew" - he knew everyone's name he had an excellent memory capacity, and only had to be told once. I can't remember the names of all those in his year, and the rest of the school, so I'm making them up - eeek - if Willie was still here he would be able to reel off each and everyone of the 160? pupils in the school at that time.
He bought out the best in his peers, they looked out for him, called out his name after he lost his sight, so as to identify themselves, and generally accepted him for himself. They tried to make him giggle, and wanted to befriend him in the playground. they took great care not to injure him in anyway and so treaded carefully around him.
Zoe has given a trophy of 'kindness' in memory of Willie to be presented to a pupil that has been particularly caring during the school year. The first year it was presented to his whole class, for all their love and support to Willie through the years. They were amazing.
PE was almost an impossible task trying to cajole him to run in a straight line from one post to another. These kind of activities were not in line with meandering around the field finding mud to dig and sticks to pick up ...he usually ran straight back towards the classroom moaning lol.
He did enjoy ball games and sometimes the apparatus could be fun....one of my most memorable days was the sports day that Willie took part in. I stood with Zoe the other side of the rope held by two parents at the finish line. All the other little ones aged 6 ran as fast as they could wind sailing by their ears, giggling and falling over as they threw themselves across the finish line.
Willie, with all the stamina and speed he could muster walked/jogged towards me and his mum, unperturbed by the fact he was a long way behind his competitors. The others long since finished, turned and watched, the whole of the school - pupils, parents and staff cheering him on. All united in compassion and willing him to keep going "Willie Willie" they all chanted. Zoe and Rheanna watched on with pride. His teaching assistant within 'catching distance' should he trip and fall.
This short chubby little boy, in baggy navy shorts and sky blue t-shirt, blond curls swaying, headed home to the finish with the biggest cheekiest grin on his face ...over the finish line and into my arms as I swept him up and twirled him round hugging him tight...to the cheers of the crowd...I placed him back on the floor and he proudly accepted his sticker, from the smiling parent.
A huge achievement, and a tremendous effort - recognised by the onlookers...probably not a dry eye on the field. Zoe was so amazed and proud of her brave boy, even though she was unable to pick him up herself she beamed from ear to ear as I swung him in the air. Willie was buoyant with excitement and relished his victory.
Such glee on his face as he was determined to get to the finish line.
(Watched closely by Mrs Ingram his T/A at the time)
A victory smile and a winning hug with mummy.
Without a doubt Willie was a winner that day. There were other special days and many happy memories..some I will continue in a later blog. For now I will leave you with the image of that little man running like he had never ran before, and hope you can hear the crowds as loudly as I can.
Saturday, March 8, 2014
A mothers worry...
Radiotherapy was fairly intense, not so much the time the treatment took but the daily routine to get to the hospital early and on time. Willie wasn't as bothered by it as other treatments.He seemed resigned to visiting the same place each day. He was put out via his line (a tube already put in intravenously especially to administer the general anesthetic and any other medications) - The radiation lasted just minutes so he was back out in no time and as there was very little anesthetic needed so it didn't have the usual side effects. He bounced back in the first few treatments, raring to go to find a new park to explore, as time went on he got more tired but still was relatively ok compared to other more painful episodes such as the chemotherapy.
The radiotherapy did halt the growth of the tumour for quite a while, the damage to his brain could not be measured accurately, but it was a forgone conclusion that many healthy brain cells would have been destroyed by the intensive radio waves.
Writing this I confess that I realise that I was so busy being involved I probably didn't consider exactly what Zoe was going through. Zoe always just got on with it...practically sorting out the details, making sure Rheanna was loved and catered for, ensuring Willie was enjoying every moment he could and being there to support and care for him through the hospital visits. It was always her aim to make each and every one a good experience...trying to pack in activities either side of the dreaded treatments.
As a mum she always put Willie above her own needs, never feeling sorry for herself even if she was in pain from her crumbling spine. I did notice her irritable bowel syndrome really flared up during treatment times. No wonder, the stress and worry of your young 4 year old being put under general anaesthetic on a daily basis, his face covered with a strong plastic see through mask that was bolted to a framework so he couldn't move an inch, would be enough to stress anyone. Zoe still has the mask, not as a gruesome reminder, but it was moulded around his face, so a rather weird reminder of him in 3D.
The nurses as always were brilliant and would ensure the whole process went smoothly, so Willie could be back to his busy day as soon as possible. We always had to wait ten minutes afterwards in case of any dire effects. I didn't go everyday, the au pair sometimes went, David his dad stepped in once or twice in between busy work schedules, sometimes friends would take a turn. again it made me ponder why Willie was born into a family where the single mum was disabled, and therefore needed 24 hour assistance to take Willie anywhere, to lift him if necessary and to push the pushchair. As Willie got more exhausted as the treatment built up over the weeks, he needed the pushchair more and more. Zoe was also getting weary, away from the routine and comfort of home. As lovely as the accommodation was and the staff were amazing - as we all know - there is no place like home.
Willie was still petite as his body was not producing growth hormones naturally. They did try to inject him on a daily basis with hormones, but it was so painful and traumatic they soon gave up. Therefore Willie remained the height of a 4 year old until he was granted his wings. The steroids made him fill 'outwards' a little bit after Radiotherapy. Actually this never bothered Willie, and for those caring for him it made life easier as you could carry him, he still fitted in his favourite swings and could be kept safe in a car seat.
Looking back now I am surprised Zoe kept so calm, I'm very proud of her, at how Willies well being overrode her anxieties and deep concerns. It was a huge decision for David and Zoe to make - whether or not Willie should undergo such invasive treatment, but it was also the simplest - as it was his only chance of survival beyond the age of 4.
How hard and heartbreaking - the level of normality ended the day he was diagnosed. Instead of worrying about a tummy bug...has he got a temperature?...To.. is he turning blue?...is he in shock? does he need emergency injection?. For me I adjusted to those levels for practical purposes and became comfortable living the moment rather than fearing the moment. But Zoe was his mum. What an emotional and scary ride, with the knowledge that one day your worst nightmare was likely to happen, ending in disaster and heartbreak.
An example of how quickly life could change I remember one Sunday morning I went to pick Rheanna up to take her to Church. She was chomping at the bit as she loved Sunday school. Also that morning Willie was unwell which meant virtual silence in the house. This bouncy 8 year old was ready for action. Rheanna had grown up most of her life in the shadow of her little brothers illness. I'm not sure how much she would have grasped the enormity of all he endured. She loved him with a passion and children have a great way of keeping life simple in their minds.
A loving and energetic young lady she accepted her plight as big sister to an ill sibling and embraced life to the full at any opportunity. I am sure it was her coping mechanism, I'm so glad she found a way, that helped her to continue to have an enjoyable childhood. Sibling rivalry for attention is often rife in any household but to compete with a baby brother that demanded all his parents attention all of the time must have been pretty hard to deal with.
Thankfully Rheanna loved being with people - not shy of strangers - always up for a good time either outside running through fields and climbing trees or making arts and crafts in a quiet kitchen. I'm so glad God made her so sociable as she was a breeze to look after. She once invited herself back to someone's house she happened to meet in the park. Zoe and Jenny consequently became firm friends...and eventually Rheanna bagged the sleepover she craved at their house, with Jennys two lively sons.
So this particular Sunday as I knocked on the door and it was flung open, a vibrant splash of colour swept past me..."I'm just going to pop upstairs to say hi to Willie Rheanna, I won't be a minute, can you wait here for me."
Her big hazel eyes looked slightly disappointed, but she skipped on the spot to keep herself amused. Zoe had text me earlier that Willie wasn't too well and I know he loved it if I popped in to give him a kiss and say hello. I ran quickly up the stairs, walked into the bedroom and glanced down at this little body sleeping soundly on top of the quilt. Dressed still in his pj's he looked peaceful. As I turned to leave I took a deep breath as I realised he actually looked 'dead' ....trying to retain a sense of calm as Zoe was standing next to me, I gently touched his small arm. No response. I got closer to see if he was breathing, and was relieved that there was evidence of life. However the colour of his skin was a blue-grey, and I tried to make him stir but to no avail.
I mentioned to Zoe that he seemed very unwell, and rather than transport him to hospital (normal for Willie rather than to doctors first) in a car seat, and make him sit upright, it would perhaps be better to phone an ambulance. I looked at Zoe and realised she was unwell to, looking dazed and tired from lack of sleep, she hadn't noticed the change in pallor of his skin. I told her to stay with him whilst I phoned for the ambulance, I ran back downstairs and dialled 999. Zoe and Willie were whizzed off to Oxford within minutes....I took Rheanna to Church. As always trying to continue life for this vulnerable little girl whilst trauma prevailed in the background. Rheanna was so used to ambulances and hospitals it didn't phase her that her family had just screeched out of their cul de sac at 50 miles an hour.
I felt very sick, I wondered if the poor little mite was going to make it. I called David to let him know, was late for Church (nothing new there) and prayed like crazy from my heart. I asked several at Glendale to pray as they were all familiar with Willie as it was 'his church' to.
Zoe told me they rushed him in to A and E ignoring her, as a team of at least 8 experts attended to him, trying everything to get him stable. It turned out he had diabetes and had gone into a coma. Minutes later would have been too late. It was experiences like these that made me realise again that it wasn't Willies time to go, so many near misses and yet he bounced right back. I shuddered thinking about what if I had just rushed off excitedly with Rheanna. God was in control as always. He didn't give Willie this tumour - these things happen in our crazy fallen world. But evidently The Lord was walking closely with him. Still this awesome little boy had much to share with us.
With new drugs to add to the existing collection of 3 x daily life saving medication, and an addition of Hypostop in his emergency bag, Willie continued with his imaginary phone calls, looking cute with those big hazel eyes and a mop of blond hair...apart from when I cut it for him in the bath....oops another misdemeanor that I had to reconcile with Zoe. I cut the angelic blond curls turning a cherub into a skinhead. Not my best day.
This was their life. Taking one day at a time, never knowing what the next hour will bring, but ensuring that the hour was filled with fun, laughter and love. There was always a huge abundance of Love all of the time. Amen to that x
The radiotherapy did halt the growth of the tumour for quite a while, the damage to his brain could not be measured accurately, but it was a forgone conclusion that many healthy brain cells would have been destroyed by the intensive radio waves.
Writing this I confess that I realise that I was so busy being involved I probably didn't consider exactly what Zoe was going through. Zoe always just got on with it...practically sorting out the details, making sure Rheanna was loved and catered for, ensuring Willie was enjoying every moment he could and being there to support and care for him through the hospital visits. It was always her aim to make each and every one a good experience...trying to pack in activities either side of the dreaded treatments.
As a mum she always put Willie above her own needs, never feeling sorry for herself even if she was in pain from her crumbling spine. I did notice her irritable bowel syndrome really flared up during treatment times. No wonder, the stress and worry of your young 4 year old being put under general anaesthetic on a daily basis, his face covered with a strong plastic see through mask that was bolted to a framework so he couldn't move an inch, would be enough to stress anyone. Zoe still has the mask, not as a gruesome reminder, but it was moulded around his face, so a rather weird reminder of him in 3D.
The nurses as always were brilliant and would ensure the whole process went smoothly, so Willie could be back to his busy day as soon as possible. We always had to wait ten minutes afterwards in case of any dire effects. I didn't go everyday, the au pair sometimes went, David his dad stepped in once or twice in between busy work schedules, sometimes friends would take a turn. again it made me ponder why Willie was born into a family where the single mum was disabled, and therefore needed 24 hour assistance to take Willie anywhere, to lift him if necessary and to push the pushchair. As Willie got more exhausted as the treatment built up over the weeks, he needed the pushchair more and more. Zoe was also getting weary, away from the routine and comfort of home. As lovely as the accommodation was and the staff were amazing - as we all know - there is no place like home.
Willie was still petite as his body was not producing growth hormones naturally. They did try to inject him on a daily basis with hormones, but it was so painful and traumatic they soon gave up. Therefore Willie remained the height of a 4 year old until he was granted his wings. The steroids made him fill 'outwards' a little bit after Radiotherapy. Actually this never bothered Willie, and for those caring for him it made life easier as you could carry him, he still fitted in his favourite swings and could be kept safe in a car seat.
Looking back now I am surprised Zoe kept so calm, I'm very proud of her, at how Willies well being overrode her anxieties and deep concerns. It was a huge decision for David and Zoe to make - whether or not Willie should undergo such invasive treatment, but it was also the simplest - as it was his only chance of survival beyond the age of 4.
How hard and heartbreaking - the level of normality ended the day he was diagnosed. Instead of worrying about a tummy bug...has he got a temperature?...To.. is he turning blue?...is he in shock? does he need emergency injection?. For me I adjusted to those levels for practical purposes and became comfortable living the moment rather than fearing the moment. But Zoe was his mum. What an emotional and scary ride, with the knowledge that one day your worst nightmare was likely to happen, ending in disaster and heartbreak.
An example of how quickly life could change I remember one Sunday morning I went to pick Rheanna up to take her to Church. She was chomping at the bit as she loved Sunday school. Also that morning Willie was unwell which meant virtual silence in the house. This bouncy 8 year old was ready for action. Rheanna had grown up most of her life in the shadow of her little brothers illness. I'm not sure how much she would have grasped the enormity of all he endured. She loved him with a passion and children have a great way of keeping life simple in their minds.
A loving and energetic young lady she accepted her plight as big sister to an ill sibling and embraced life to the full at any opportunity. I am sure it was her coping mechanism, I'm so glad she found a way, that helped her to continue to have an enjoyable childhood. Sibling rivalry for attention is often rife in any household but to compete with a baby brother that demanded all his parents attention all of the time must have been pretty hard to deal with.
Thankfully Rheanna loved being with people - not shy of strangers - always up for a good time either outside running through fields and climbing trees or making arts and crafts in a quiet kitchen. I'm so glad God made her so sociable as she was a breeze to look after. She once invited herself back to someone's house she happened to meet in the park. Zoe and Jenny consequently became firm friends...and eventually Rheanna bagged the sleepover she craved at their house, with Jennys two lively sons.
So this particular Sunday as I knocked on the door and it was flung open, a vibrant splash of colour swept past me..."I'm just going to pop upstairs to say hi to Willie Rheanna, I won't be a minute, can you wait here for me."
Her big hazel eyes looked slightly disappointed, but she skipped on the spot to keep herself amused. Zoe had text me earlier that Willie wasn't too well and I know he loved it if I popped in to give him a kiss and say hello. I ran quickly up the stairs, walked into the bedroom and glanced down at this little body sleeping soundly on top of the quilt. Dressed still in his pj's he looked peaceful. As I turned to leave I took a deep breath as I realised he actually looked 'dead' ....trying to retain a sense of calm as Zoe was standing next to me, I gently touched his small arm. No response. I got closer to see if he was breathing, and was relieved that there was evidence of life. However the colour of his skin was a blue-grey, and I tried to make him stir but to no avail.
I mentioned to Zoe that he seemed very unwell, and rather than transport him to hospital (normal for Willie rather than to doctors first) in a car seat, and make him sit upright, it would perhaps be better to phone an ambulance. I looked at Zoe and realised she was unwell to, looking dazed and tired from lack of sleep, she hadn't noticed the change in pallor of his skin. I told her to stay with him whilst I phoned for the ambulance, I ran back downstairs and dialled 999. Zoe and Willie were whizzed off to Oxford within minutes....I took Rheanna to Church. As always trying to continue life for this vulnerable little girl whilst trauma prevailed in the background. Rheanna was so used to ambulances and hospitals it didn't phase her that her family had just screeched out of their cul de sac at 50 miles an hour.
I felt very sick, I wondered if the poor little mite was going to make it. I called David to let him know, was late for Church (nothing new there) and prayed like crazy from my heart. I asked several at Glendale to pray as they were all familiar with Willie as it was 'his church' to.
Zoe told me they rushed him in to A and E ignoring her, as a team of at least 8 experts attended to him, trying everything to get him stable. It turned out he had diabetes and had gone into a coma. Minutes later would have been too late. It was experiences like these that made me realise again that it wasn't Willies time to go, so many near misses and yet he bounced right back. I shuddered thinking about what if I had just rushed off excitedly with Rheanna. God was in control as always. He didn't give Willie this tumour - these things happen in our crazy fallen world. But evidently The Lord was walking closely with him. Still this awesome little boy had much to share with us.
With new drugs to add to the existing collection of 3 x daily life saving medication, and an addition of Hypostop in his emergency bag, Willie continued with his imaginary phone calls, looking cute with those big hazel eyes and a mop of blond hair...apart from when I cut it for him in the bath....oops another misdemeanor that I had to reconcile with Zoe. I cut the angelic blond curls turning a cherub into a skinhead. Not my best day.
This was their life. Taking one day at a time, never knowing what the next hour will bring, but ensuring that the hour was filled with fun, laughter and love. There was always a huge abundance of Love all of the time. Amen to that x
Thursday, March 6, 2014
Ronald McDonald
McDonalds may not be your favourite restaurant...especially after Jamie Oliver's recent reports. I love McD's...although I hardly eat their food as I am perpetually dieting. I do have many fond memories of doing drive through's with Willie.
It was definitely on Zoe's taboo list of places to eat. I did risk her wrath on a few occasions...especially after Willie lost his sight. Trying to fill his day with different experiences..a simple 'drive through' could be a big adventure. Describing people in their cars waiting in the queue (obviously with a licence to exaggerate fully - the bald man with big ears really was picking his nose..) talking to the server, ordering the 'naughty chips' and then holding them in his hands - provoked many giggles. I recall that he only ever ate one or two fries...I'm not sure he even liked them ....but our 'naughty antics' were enough to amuse Willie for at least half an hour - from anticipation to handing back the bag of cold fries as he got out of the car. Worth every penny. Willie was an honest little man so I knew I had better confess to his mum before I left...as he would have mentioned it within minutes and I would have been in even bigger trouble lol.
But this is not the reason I love Macca D's ...it's their charity box for Ronald McDonald charities I spot on my visits ...these bring back fond memories of the Ronald McDonald accommodation at the John Radcliffe hospital. It's good to see their charity in action. For those who have experienced young people in hospital, you would know how important it is to be able to stay close by your child throughout their treatment. Often a camp bed is provided next to the ward bed for the patient. But can you imagine moving into a sparse ward with little room for hospital essentials - let alone a big suitcase of your clothes for the long weeks ahead.
Ronald McDonald Housing provided a modern small one bedroom studio flat with a communal kitchen. A safe haven away from the hub bub and busyness of the ward. A place to be still, pray, catch up on sleep...cry. I imagine families discussed in private their worries and concerns, talking to their other children about normal every day activities, catching up on their homework and just 'being' with them.
Rheanna didn't opt to stay that often. There were others that could keep her life ticking over at home. But this space would be used for quiet moments with her mum. Zoe enjoyed having a kitchen she could cook food she loved and so they would eat together up on the top floor, enjoying the vast Views over the surrounding villages and Oxford countryside.
Willie often joined them for a healthy lunch and special time together. His excitement always enhanced by watching the huge cranes in close proximity doing what cranes do best...still to this day I feel sick at the thought of sitting in that little box at the very top several hundred feet up...manoeuvring a huge concrete block weighing a few tonnes. How did it not fall over. How did the man go to the toilet? We enjoyed discussing the possibilities.
Rheanna would often read or draw...as not so interested in building sites. But she would be excited for Willie (for a couple of minutes) as he pointed out several on the landscape.
It's only when journeying with young people that are seriously ill that you are enlightened to the many facilities around to help out families in their time of distress. There were a few charitable concerns that helped Zoe out in different capacities at different times.
Clic Sargeant is a charity that amongst other things provides houses local to the hospitals for stays of a few days to a few weeks. This is a facility that is home from home. It is serviced with cleaners and lovely ladies to help you out if you need support. Sadly supply outweighs demand as it is a costly business but more sad is that the need is high. The house Zoe could stay in for a few weeks whilst Willie underwent radiotherapy was adjacent to the John Radcliffe hospital in a leafy suburb estate.
With four bedrooms and large living accommodation it was perfect for relaxation and easy access to the daily trip to the radiotherapy hospital a couple of miles down the road. Willie soon settled in to his new home, and enjoyed exploring the toy box and videos on offer. His favourites also travelled with him in the bag, so Rosie and Jim rollerblading and Bob the Builder were the usual choices, rather than watching anything new.
Staying in this lovely accomodation saved an early morning dash from Newbury (which is over half an hours drive away) for a 9 o'clock start, 5 days a week for 6 long weeks. These charitable concerns work tirelessly to raise money and the money is well spent. Also years of experience of other families suffering - maybe living a couple of hundred miles away from a specialist hospital - had prompted these charities to set up.
The Helen House children's hospice in Oxford was started by Sister Frances Dominica after her experience with the family of a young girl called Helen. Helen needed 24 hour care and Sister Francis realised the family's plight and so began work on opening a hospice to meet that need. Praise God that something positive came about through Helen and so many hundreds of families have benefited over the years since November 1982 when the first children's hospice in the world opened. In 2004 Douglas House was added to the facility for 16-25 year olds.
One of the weeks, Zoe stayed at Helen house.I had the privilege of visiting this awesome place. It has eight children's bedrooms to keep a homely feel - each child has 24 hour care - personalised and tailored to their individual needs. The emphasis is about making the most of life whatever the circumstances. Many other children's hospices have been founded since - including Naomi House near Winchester - another amazing place. My heart breaks though knowing how much they are in demand. We have no idea the huge scale of families managing with little respite. A week in Helen House was like gold dust.
When we went to look round - meticulous care was given to find out Willies exact requirements regarding diet and physical needs - most importantly his favourite pastimes. They showed us around the comfortable house with a huge kitchen, arts and crafts room in which Rheanna nearly pee'd her pants with excitement - it was stocked lavishly with incredible bits and pieces of art accessories, felt, sparkly bits...everything a good arts and craft girl ever dreamed of. We were allowed to make a few pictures whilst we were there..just to try it out!.
They have an incredible music room filled with numerous instruments, some I had never seen before. A sensory room..a must for these places to stimulate those severely disabled. Willie enjoyed some of the clever apparatus and lights...all sorts of clever inventions..in a room full of padding to enjoy safely. The gardens were stunning and safe for Willie to walk around. Swings for 'wheelchairs' and larger 'baby swings' that Willie loved most. A huge sandpit and small trikes to ride. The garden was a firm favourite for sure. Watching Willie exploring this beautiful space I realised it was going to be a real Blessing to them as they went through the tough treatment ahead. Getting him out of the sandpit before dark was going to be a different issue altogether.
The staff were friendly and welcoming. They invited us to stay for lunch which we enjoyed, and found out more about the history of this awesome place. It costs hundreds of thousands a year, money raised tirelessly by the charities but worth every penny for those able to have respite when needed.
Naomi House was also an intricate part of Willies journey, but more about that in a later blog.
These places that are provided free of charge are invaluable to those heartbroken and anxiously waiting and watching their young children undergo major surgery and difficult treatment. It enables families to be kept together during the most traumatic times in their lives. I praise God for each and everyone of these provisions. Thankfully in abundance now throughout the world.
So next time you spot the Ronald McDonald charity box ...give generously knowing it is making a difference to so many. Visit the charity shops with pride - knowing every little helps. I hope you have not had to visit or will never have to see the inside of any one of these incredible buildings, but I hope I have given you a glimpse of how incredibly precious they are. Praise God indeed.
It was definitely on Zoe's taboo list of places to eat. I did risk her wrath on a few occasions...especially after Willie lost his sight. Trying to fill his day with different experiences..a simple 'drive through' could be a big adventure. Describing people in their cars waiting in the queue (obviously with a licence to exaggerate fully - the bald man with big ears really was picking his nose..) talking to the server, ordering the 'naughty chips' and then holding them in his hands - provoked many giggles. I recall that he only ever ate one or two fries...I'm not sure he even liked them ....but our 'naughty antics' were enough to amuse Willie for at least half an hour - from anticipation to handing back the bag of cold fries as he got out of the car. Worth every penny. Willie was an honest little man so I knew I had better confess to his mum before I left...as he would have mentioned it within minutes and I would have been in even bigger trouble lol.
But this is not the reason I love Macca D's ...it's their charity box for Ronald McDonald charities I spot on my visits ...these bring back fond memories of the Ronald McDonald accommodation at the John Radcliffe hospital. It's good to see their charity in action. For those who have experienced young people in hospital, you would know how important it is to be able to stay close by your child throughout their treatment. Often a camp bed is provided next to the ward bed for the patient. But can you imagine moving into a sparse ward with little room for hospital essentials - let alone a big suitcase of your clothes for the long weeks ahead.
Ronald McDonald Housing provided a modern small one bedroom studio flat with a communal kitchen. A safe haven away from the hub bub and busyness of the ward. A place to be still, pray, catch up on sleep...cry. I imagine families discussed in private their worries and concerns, talking to their other children about normal every day activities, catching up on their homework and just 'being' with them.
Rheanna didn't opt to stay that often. There were others that could keep her life ticking over at home. But this space would be used for quiet moments with her mum. Zoe enjoyed having a kitchen she could cook food she loved and so they would eat together up on the top floor, enjoying the vast Views over the surrounding villages and Oxford countryside.
Willie often joined them for a healthy lunch and special time together. His excitement always enhanced by watching the huge cranes in close proximity doing what cranes do best...still to this day I feel sick at the thought of sitting in that little box at the very top several hundred feet up...manoeuvring a huge concrete block weighing a few tonnes. How did it not fall over. How did the man go to the toilet? We enjoyed discussing the possibilities.
Rheanna would often read or draw...as not so interested in building sites. But she would be excited for Willie (for a couple of minutes) as he pointed out several on the landscape.
It's only when journeying with young people that are seriously ill that you are enlightened to the many facilities around to help out families in their time of distress. There were a few charitable concerns that helped Zoe out in different capacities at different times.
Clic Sargeant is a charity that amongst other things provides houses local to the hospitals for stays of a few days to a few weeks. This is a facility that is home from home. It is serviced with cleaners and lovely ladies to help you out if you need support. Sadly supply outweighs demand as it is a costly business but more sad is that the need is high. The house Zoe could stay in for a few weeks whilst Willie underwent radiotherapy was adjacent to the John Radcliffe hospital in a leafy suburb estate.
With four bedrooms and large living accommodation it was perfect for relaxation and easy access to the daily trip to the radiotherapy hospital a couple of miles down the road. Willie soon settled in to his new home, and enjoyed exploring the toy box and videos on offer. His favourites also travelled with him in the bag, so Rosie and Jim rollerblading and Bob the Builder were the usual choices, rather than watching anything new.
Staying in this lovely accomodation saved an early morning dash from Newbury (which is over half an hours drive away) for a 9 o'clock start, 5 days a week for 6 long weeks. These charitable concerns work tirelessly to raise money and the money is well spent. Also years of experience of other families suffering - maybe living a couple of hundred miles away from a specialist hospital - had prompted these charities to set up.
The Helen House children's hospice in Oxford was started by Sister Frances Dominica after her experience with the family of a young girl called Helen. Helen needed 24 hour care and Sister Francis realised the family's plight and so began work on opening a hospice to meet that need. Praise God that something positive came about through Helen and so many hundreds of families have benefited over the years since November 1982 when the first children's hospice in the world opened. In 2004 Douglas House was added to the facility for 16-25 year olds.
One of the weeks, Zoe stayed at Helen house.I had the privilege of visiting this awesome place. It has eight children's bedrooms to keep a homely feel - each child has 24 hour care - personalised and tailored to their individual needs. The emphasis is about making the most of life whatever the circumstances. Many other children's hospices have been founded since - including Naomi House near Winchester - another amazing place. My heart breaks though knowing how much they are in demand. We have no idea the huge scale of families managing with little respite. A week in Helen House was like gold dust.
When we went to look round - meticulous care was given to find out Willies exact requirements regarding diet and physical needs - most importantly his favourite pastimes. They showed us around the comfortable house with a huge kitchen, arts and crafts room in which Rheanna nearly pee'd her pants with excitement - it was stocked lavishly with incredible bits and pieces of art accessories, felt, sparkly bits...everything a good arts and craft girl ever dreamed of. We were allowed to make a few pictures whilst we were there..just to try it out!.
They have an incredible music room filled with numerous instruments, some I had never seen before. A sensory room..a must for these places to stimulate those severely disabled. Willie enjoyed some of the clever apparatus and lights...all sorts of clever inventions..in a room full of padding to enjoy safely. The gardens were stunning and safe for Willie to walk around. Swings for 'wheelchairs' and larger 'baby swings' that Willie loved most. A huge sandpit and small trikes to ride. The garden was a firm favourite for sure. Watching Willie exploring this beautiful space I realised it was going to be a real Blessing to them as they went through the tough treatment ahead. Getting him out of the sandpit before dark was going to be a different issue altogether.
The staff were friendly and welcoming. They invited us to stay for lunch which we enjoyed, and found out more about the history of this awesome place. It costs hundreds of thousands a year, money raised tirelessly by the charities but worth every penny for those able to have respite when needed.
Naomi House was also an intricate part of Willies journey, but more about that in a later blog.
These places that are provided free of charge are invaluable to those heartbroken and anxiously waiting and watching their young children undergo major surgery and difficult treatment. It enables families to be kept together during the most traumatic times in their lives. I praise God for each and everyone of these provisions. Thankfully in abundance now throughout the world.
So next time you spot the Ronald McDonald charity box ...give generously knowing it is making a difference to so many. Visit the charity shops with pride - knowing every little helps. I hope you have not had to visit or will never have to see the inside of any one of these incredible buildings, but I hope I have given you a glimpse of how incredibly precious they are. Praise God indeed.
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